Tag Archive | Diagnosis

The Countdown to Summer Begins

Only 3 more days until summer break.  This year has flown by.

This was our first school year since my little guy’s diagnosis and it went WAY better than I initially expected.

He was diagnosed in July and school began only one month later in August.   I was so incredibly freaked out.

How in the world could I let him out of my sight for 8 hours during the school day.  We weren’t on the pump when the school year started.  We were still brand new to the world of 24 hour diabetes care for a child.

How could we possibly trust another person to care for him when I didn’t even feel confident in my own abilities?  I considered homeschooling him, but that would mean quitting my job.

When I called the school to discuss his care, I had a long conversation with the nurse.

“He has one of the few conditions the school board considers to be life threatening”, she said to me on the phone.

My heart stopped.  I knew this already.  Hearing it out loud made me want to throw up.

But, we took it one day at a time.  One phone call at a time, three times each day…and we survived.

This is a major milestone for us.  I think now we can look forward to the next school year without a feeling of dread….and I’m thanking goodness for kind people who are willing to take such careful care of a child who isn’t their own.

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One Thing to Improve – Diabetes Blog Week Day 3

Diabetes Blog Week Day 3

Our instructions:  Yesterday we gave ourselves and our loved ones a big pat on the back for one thing we are great at.  Today let’s look at the flip-side.  We probably all have one thing we could try to do better.  Why not make today the day we start working on it.  No judgments, no scolding, just sharing one small thing we can improve so the DOC can cheer us on!

This one was easy for me to pick.  One thing I would like to do better is help my guys dose their insulin BEFORE eating.  We do try to do this, but it is REALLY REALLY hard.  Partly because it requires planning.  Mostly because it is almost impossible to convince a hungry  person he should wait 10-15 minutes after calculating carbs and dosing insulin to eat.

When the little guy was diagnosed, we were given these instructions:

1.  Check blood sugar

2.  Dose insulin for food based on carb count, including any correction dose for high sugar

3.  Take the first two numbers of the blood sugar reading.  This is how many minutes after taking insulin you should wait to eat your food.  (for example, if blood sugar is 130, you would take insulin and then wait 13 minutes to eat)

The reason for doing this is that insulin takes 30-90 minutes to get working and even reach its peak in your system.  Taking the insulin before eating avoids blood sugar spikes after your meal or snack.  Ultimately, doing just this one thing can  help lower the A1C result, a definite goal for us.

Sounds great.  Simple to calculate.  Easy to recognize the benefit.  Difficult to implement in real life.  Especially with a kiddo who’s convinced he is “starving” and is watching his brother and sister scarf down their food while he waits.

So, this is what I’d like to improve for us.   I know with a little work we can get much better at this.

I’d really love to hear how this goes for others.  I’m sure we aren’t the only families struggling with this issue.

Find A Friend – Diabetes Blog Week Day 1

This week is the 3rd annual Diabetes Blog Week.  I’ve only been blogging about this stuff for a couple of months, but what the heck, I’m going to “go for it”.

Each day of the week, there is a chosen topic for everyone participating.  Day 1 is “Find a Friend”.

Our instructions:   “It seems the most popular thing about Diabetes Blog Week is that it helps us find blogs we weren’t reading yet and connect with some new blog friends.  With that in mind, let’s kick off Diabetes Blog Week by making some new connections.  Think about the d-blogs you read that you think we may not know about and introduce us to one that you love!!  Let’s all find a new friend today! “

Wow.  Can you say impossible task?  There are so many amazing blogs out there.   Immediate decision made to change the word “one” in the above instructions to “a few”.

I’ve been a lurker in the DOC since right after my little guy was diagnosed.   (For those of you wondering, DOC is short for the Diabetes Online Community…it took me a while to figure this out).  More recently, I’ve become a regular follower of quite a few blogs, always looking forward to the next post delivered to my inbox.

I’m particularly  obsessed with the blogs written by parents of children with Type 1.   There is something oddly addictive about reading stories from others whilst nodding my head and saying to myself, “OMG..Yes, I know!  I’ve been there too.”  Aside from my husband and family, reading blogs written by other parents was my single most comforting activity after the little guy’s diagnosis.  I knew I wasn’t alone and for that, I was beyond grateful.

So, here it is.  A few of my favorites.

1.  Bigfoot Child Have Diabetes – So funny.   Makes me laugh every time.   Love the writing style and our kiddos are almost identical in age, gender and diagnosis date, so there is heavy head nodding in agreement.  Reminds me that a sense of humor is required when it comes to getting through each day.

2.  Arden’s Day – From a dad’s perspective.  Love the latest info on diabetes and am inspired by his desire to get involved by creating a new charity to provide insulin pumps and CGM’s to those less fortunate.

3.  Dog Goes to College – So inspirational to read about a successful young lady in college with Type 1.  Awesome place to learn about diabetic service dogs.  Amelia is a great role model for young people with Type 1.

Hope you’ll check these out, if you haven’t seen them already.  I’m looking forward to discovering a few new blogs myself this week!

It Gets Better

My son was diagnosed with Type 1 last July, while we were on vacation in Florida.  After reading the stories of others, I consider ourselves lucky.  No DKA and  we only spent two nights in the hospital.

When he was discharged, I remember driving away from the hospital with an overwhelming sense of panic.    I felt so helpless.   Only two days spent learning how to keep him alive.  It didn’t seem like enough time.  All of the information was spinning around in my head.  I could only think to myself  “How are we going to do this?” Of course, I didn’t say that out loud.  I didn’t want to scare him.  I didn’t want him to feel the fear I was feeling.

It didn’t even matter that my husband of 9 years had Type 1.  I felt like I knew nothing.

He was starving.  He begged for something besides hospital food, but I wouldn’t even consider fast food drive through because I didn’t know the exact carb counts of the food.  (duh, you can look them up)

He fell asleep on the hour drive to my mother-in-law’s house and instant alarms went off in my head….Is he high?  Is he low?  Should I climb into the back seat of the rental car and check his sugar?  I felt so out of control.

On the radio, a song played and she was singing my thoughts…

“Can we pretend that airplanes in the night sky are like shooting stars?  I could really use a wish right now, a wish right now.”

I would have given anything at that moment for one wish….

It’s been nearly 10 months since his diagnosis.  Now, things seem normal.  We are calm.  We know what to do and when to do it.

Today, he had his quarterly endo appointment.  The hour drive in bumper to bumper traffic stunk, but the 6.4 A1C result was worth it.  When I heard the number, I smiled.

A lot of days I feel like a failure.  I fault myself for the highs and lows.   I blame myself for miscounting carbs or underestimating the impact of exercise.

But today……today was good…..I’m still smiling!