Only 3 more days until summer break. This year has flown by.
This was our first school year since my little guy’s diagnosis and it went WAY better than I initially expected.
He was diagnosed in July and school began only one month later in August. I was so incredibly freaked out.
How in the world could I let him out of my sight for 8 hours during the school day. We weren’t on the pump when the school year started. We were still brand new to the world of 24 hour diabetes care for a child.
How could we possibly trust another person to care for him when I didn’t even feel confident in my own abilities? I considered homeschooling him, but that would mean quitting my job.
When I called the school to discuss his care, I had a long conversation with the nurse.
“He has one of the few conditions the school board considers to be life threatening”, she said to me on the phone.
My heart stopped. I knew this already. Hearing it out loud made me want to throw up.
But, we took it one day at a time. One phone call at a time, three times each day…and we survived.
This is a major milestone for us. I think now we can look forward to the next school year without a feeling of dread….and I’m thanking goodness for kind people who are willing to take such careful care of a child who isn’t their own.
I was thinking today about insulin pump set changes.
We have to change infusion sets every 2-3 days. ( “we” really means “I”…..hehe).
As fate would have it, both my guys started on one aligned schedule, but that only lasted a couple of weeks. A kinked cannula or unexplained high blood sugars means an immediate set change, completely screwing up my carefully mapped out plan.
One day, I decided to calculate how this all adds up.
10 set changes per month for each super handsome guy = 20 insulin pump set changes per month.
Now add the CGM sensor change for my little guy on 5 of those 20 days. (Extra big needle so we push the limit and he wears each sensor for 6 days instead of 3).
Good thing I have this stuff mastered. The insulin pump has nothing on us.
I cannot believe the amount of trash that comes from one pump set and sensor change. It amazes me every time. When we go to the Barbara Davis Center in Denver, they always have artwork made out of test strip bottles and pump parts, etc. I wish we could make something cool of all this junk, but alas, into the trash it goes.
My little guy has been on the pump since January of this year. So far, the experience has been great. I will admit, I was a little overwhelmed when we went through the training. So much information at once, sometimes with scary warnings…
“Don’t disconnect this way”
“No roller coasters”
“Watch out when going through airport security and riding on a plane”
“No cold insulin and watch those air bubbles”
etc., etc., etc.
It helped to know that hubby would be trying out the pump also, so they could go through it together. Now, after several months, we have the hang of it and I can change a pump set in no time flat.
While the overall pump process was great, getting the settings right has been a rough road for my son. Activity at school is so varied, one day he would be high, the next low. The school calls me up to three times a day after he checks his sugar before morning snack, before lunch and before coming home on the bus. Every day has been an adventure. The worst part of it all was knowing what he was going through. It may seem like fun to get out of class, but it stinks to miss lunch with your friends or to be just plain different.
But FINALLY, we had an (almost) perfect day.
Wake up: 116
Before morning snack: 124
Before lunch: 109
Before coming home on bus: 176
I’ll take it! I felt like throwing a party. Hooray!