Tag Archive | juvenile

The Countdown to Summer Begins

Only 3 more days until summer break.  This year has flown by.

This was our first school year since my little guy’s diagnosis and it went WAY better than I initially expected.

He was diagnosed in July and school began only one month later in August.   I was so incredibly freaked out.

How in the world could I let him out of my sight for 8 hours during the school day.  We weren’t on the pump when the school year started.  We were still brand new to the world of 24 hour diabetes care for a child.

How could we possibly trust another person to care for him when I didn’t even feel confident in my own abilities?  I considered homeschooling him, but that would mean quitting my job.

When I called the school to discuss his care, I had a long conversation with the nurse.

“He has one of the few conditions the school board considers to be life threatening”, she said to me on the phone.

My heart stopped.  I knew this already.  Hearing it out loud made me want to throw up.

But, we took it one day at a time.  One phone call at a time, three times each day…and we survived.

This is a major milestone for us.  I think now we can look forward to the next school year without a feeling of dread….and I’m thanking goodness for kind people who are willing to take such careful care of a child who isn’t their own.

Wild Card – Diabetes Blog Week Day 6

Diabetes Blog Week Day 6 – Wild Card

Today we were instructed to post diabetes related pictures.  Instead, I’m going to use the wild card option and do my own thing 🙂

Nick Jonas is one example of a celebrity with Type 1 diabetes.  My little guy is really into music and while the Jonas Brothers might not be on the top of a little boy’s idol list, there is no questioning that he demonstrates you can “do anything” with diabetes.

So today, I’m sharing a video of a song Nick wrote about life with Type 1.

If you’ve never heard it before, I hope you enjoy…

(note:  This is a fan-made video from you tube.  I do not own a bit of it…clips, music or lyrics)

One Thing to Improve – Diabetes Blog Week Day 3

Diabetes Blog Week Day 3

Our instructions:  Yesterday we gave ourselves and our loved ones a big pat on the back for one thing we are great at.  Today let’s look at the flip-side.  We probably all have one thing we could try to do better.  Why not make today the day we start working on it.  No judgments, no scolding, just sharing one small thing we can improve so the DOC can cheer us on!

This one was easy for me to pick.  One thing I would like to do better is help my guys dose their insulin BEFORE eating.  We do try to do this, but it is REALLY REALLY hard.  Partly because it requires planning.  Mostly because it is almost impossible to convince a hungry  person he should wait 10-15 minutes after calculating carbs and dosing insulin to eat.

When the little guy was diagnosed, we were given these instructions:

1.  Check blood sugar

2.  Dose insulin for food based on carb count, including any correction dose for high sugar

3.  Take the first two numbers of the blood sugar reading.  This is how many minutes after taking insulin you should wait to eat your food.  (for example, if blood sugar is 130, you would take insulin and then wait 13 minutes to eat)

The reason for doing this is that insulin takes 30-90 minutes to get working and even reach its peak in your system.  Taking the insulin before eating avoids blood sugar spikes after your meal or snack.  Ultimately, doing just this one thing can  help lower the A1C result, a definite goal for us.

Sounds great.  Simple to calculate.  Easy to recognize the benefit.  Difficult to implement in real life.  Especially with a kiddo who’s convinced he is “starving” and is watching his brother and sister scarf down their food while he waits.

So, this is what I’d like to improve for us.   I know with a little work we can get much better at this.

I’d really love to hear how this goes for others.  I’m sure we aren’t the only families struggling with this issue.

Find A Friend – Diabetes Blog Week Day 1

This week is the 3rd annual Diabetes Blog Week.  I’ve only been blogging about this stuff for a couple of months, but what the heck, I’m going to “go for it”.

Each day of the week, there is a chosen topic for everyone participating.  Day 1 is “Find a Friend”.

Our instructions:   “It seems the most popular thing about Diabetes Blog Week is that it helps us find blogs we weren’t reading yet and connect with some new blog friends.  With that in mind, let’s kick off Diabetes Blog Week by making some new connections.  Think about the d-blogs you read that you think we may not know about and introduce us to one that you love!!  Let’s all find a new friend today! “

Wow.  Can you say impossible task?  There are so many amazing blogs out there.   Immediate decision made to change the word “one” in the above instructions to “a few”.

I’ve been a lurker in the DOC since right after my little guy was diagnosed.   (For those of you wondering, DOC is short for the Diabetes Online Community…it took me a while to figure this out).  More recently, I’ve become a regular follower of quite a few blogs, always looking forward to the next post delivered to my inbox.

I’m particularly  obsessed with the blogs written by parents of children with Type 1.   There is something oddly addictive about reading stories from others whilst nodding my head and saying to myself, “OMG..Yes, I know!  I’ve been there too.”  Aside from my husband and family, reading blogs written by other parents was my single most comforting activity after the little guy’s diagnosis.  I knew I wasn’t alone and for that, I was beyond grateful.

So, here it is.  A few of my favorites.

1.  Bigfoot Child Have Diabetes – So funny.   Makes me laugh every time.   Love the writing style and our kiddos are almost identical in age, gender and diagnosis date, so there is heavy head nodding in agreement.  Reminds me that a sense of humor is required when it comes to getting through each day.

2.  Arden’s Day – From a dad’s perspective.  Love the latest info on diabetes and am inspired by his desire to get involved by creating a new charity to provide insulin pumps and CGM’s to those less fortunate.

3.  Dog Goes to College – So inspirational to read about a successful young lady in college with Type 1.  Awesome place to learn about diabetic service dogs.  Amelia is a great role model for young people with Type 1.

Hope you’ll check these out, if you haven’t seen them already.  I’m looking forward to discovering a few new blogs myself this week!

How Many Sets Can A Wood Chuck Change if a Wood Chuck Could Change Sets?

I was thinking today about insulin pump set changes.

We have to change infusion sets every 2-3 days.  ( “we” really means “I”…..hehe).

As fate would have it, both my guys started on one aligned schedule, but that only lasted a couple of weeks.  A kinked cannula or unexplained high blood sugars means an immediate set change, completely screwing up my carefully mapped out plan.

One day, I decided to calculate how this all adds up.

10 set changes per month for each super handsome guy = 20 insulin pump set changes per month.

That’s insane!

Now add the CGM sensor change for my little guy on 5 of those 20 days.  (Extra big needle so we push the limit and he wears each sensor for 6 days instead of 3).

Good thing I have this stuff mastered.  The insulin pump has nothing on us.

P.S.:

This week, I’ll be participating in the 3rd annual Diabetes Blog Week.  That means diabetes bloggers around the world will be blogging on a set topic each day of the week.  More information can be found here:  http://www.bittersweetdiabetes.com/2012/05/third-annual-diabetes-blog-week.html

Happy Reading!

“Diabetics Can’t Eat Candy”…Yes, I said that!

I met my husband when I was 24.  We were both working at the same large corporation and by some crazy chance, were assigned to work on a project together…me from Human Resources, him from IT.  I didn’t have a choice about what would follow.  His sparkling blue eyes, great smile and awesome sense of humor reeled me in right away.  We worked together for 6 months before his contract ended, and 6 months after that, we were married.  Sometimes, you just know.

The point of this story is that one day before we started dating, a co-worker said to me “Did you know he has diabetes?”    My response, “No he doesn’t, I saw him eating m&m’s.  Diabetics can’t eat candy!”

Yes, I said that.

Fast forward to now.   We’ve been married 10 years.   We have three beautiful kids, one of which also has Type 1 diabetes.

Of course, now I know the comment I made so long ago is ridiculous.  Now I know that diabetics can eat anything a non-diabetic can eat.  Now I know that in some circumstances, a diabetic MUST eat candy to survive.

Over our years of marriage, I’ve heard a lot of ridiculous comments about diabetes.  Every time I hear one, it gets under my skin.  Particularly when one is directed at my 9 year old child.   But then I remind myself, that I thought wrong too.  So I take a deep breath and I calmly explain the truth, in hopes that we can move past the myths one person at a time.